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Patient Testimonial: Care Coordination for Children (CC4C)

Being a parent of a young child is hard work—preparing bottles, changing diapers, giving baths, and the list goes on. But, being a parent of a child with special needs is even harder, especially when you’re concerned about your child not meeting their developmental milestones.

Care Coordination for Children (CC4C) is a voluntary program that supports, at no cost, children birth to five in Catawba County at risk for reaching their developmental potential. Care coordinators aim to support the successful growth and development of children by identifying and educating families about the programs, services, and resources available to meet their children’s health needs, and by empowering parents to make decisions that best meet their children’s needs.

One first time mom was referred to the CC4C program to help connect her with resources that would help her daughter who was recently diagnosed with Cerebral Palsy. Here’s what that first time mom had to say about CC4C:

“When I first heard about CC4C my first thought was, ‘Who is this?’ But, the care manager wanted to see us. So, I said, ‘sure.’ I am glad I did because the care manager was so sweet. I even introduced her to my family. I knew from early on that we were going to click. She has been a big help ever since.

To help manage the health of my baby with special needs, my care coordinator connected us with Head Start1, the Children's Developmental Services Agency (CDSA)2, the Community Alternatives Program for Children (CAP-C)3, home health care, and Family Services transportation program.

In addition to those examples, my care manager constantly provides me support and always asks if I need anything else. For example, my care coordinator knew that I was concerned about my baby being exposed to germs due to her weakened immune system. So she arranged for me to receive my WIC4 nutritional food vouchers at home versus having to go into the office and expose my baby’s fragile system to germs. She also arranged for formula to be delivered to our home.

Knowing that I expect the best when it comes to my baby, my care coordinator found out that I was unhappy with a nutritionist that had been serving us and helped secure a new nutritionist that was the best fit for my baby’s needs.

One time, she not only brought donated clothes for my baby, but also provided donated clothes for me! And, oh, those clothes were so cute!

My care coordinator is a true advocate for my baby. I will never forget the time she visited the pulmonologist with me. She knew how important that visit was to me. Not only did she make sure we had transportation to the appointment, she also provided support during the visit. It was during that visit with the pulmonologist that we were able to find out about additional needs for my baby and start providing her more relief.

I think a lot of people could benefit from CC4C.”

1Head Start is a federal program that promotes the school readiness of children ages birth to 5 from low-income families by enhancing their cognitive, social and emotional development.

2 The Children's Developmental Services Agency is a state agency serving children from birth to 3 years with suspected or diagnosed developmental disabilities. CDSA staff provides multidisciplinary assessments and works with parents, health care providers in developing an understanding of the child's specific needs. CDSA will provide services or referrals to address those needs.

3 The Community Alternatives Program for Children (CAP/C) provides home and community based services to medically fragile children who, because of their medical needs are at risk for institutionalization in a nursing home.

4 WIC is a supplemental healthy food program offered by Catawba County Public Health for infants and children up to age five and pregnant, postpartum, and breastfeeding women.